Why I have/my child has the tube they have now - a highlight on the medical conditions that require tube feeding.
Isabella has a condition called Holoprosencephaly (HPE) that was diagnosed at 20 weeks utero. HPE is a disorder characterized by the failure of the prosencephalon (the forebrain of the embryo) to develop. This is a very serious condition that can be fatal. Along with this condition she also has diabetes insipidus (DI), where she cannot control her sodium levels, epilepsy, and severe acid reflux. It was the severe acid reflux that caused Isabella to get her gtube when she was 17 months old. She was vomiting and arching in pain, so we rushed to Denver. They determined she had severe acid reflux and this caused her to be in horrible pain, so she had her gtube placed. At 23 months old she caught a severe stomach flu and we once again rushed to Denver. Since she could not keep anything down, medications included, she had horrible seizures and her sodium went sky high. It was agreed upon that a GJ tube would be the best option for our situation. The difference between a G and J tube are that the G goes into the stomach and the J goes into the intestine.
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