So I've been slacking in the updating department..... :(
September 2011, Isabella was hospitalized for shunt failure. Her neurosurgeon determined it was a mechanical defect with her VP Shunt. Due to this, she put a fixed pressure shunt, since they do not have as many mechanisms.
November 2011, I noticed an abscess near the shunt site and her neurosurgeon told us to head back down to Denver. Once there, she was treated with antibiotics, in hopes it would heal on it's on.
December 2011, the abscess came back worse, so we were once again off to Denver, this time Isabella had to have the site surgically cleaned out. It was determined that it was a dissolvable stitch that her body had rejected. Needless to say we will be staying away from those in the future!!!
January 2012, there had been a really bad flu going around Casper and Isabella caught it. :( She was vomiting around her nissan wrap and wasn't able to keep anything down. Her GI doctor advised we head to Denver, so we did. Her sodium skyrocketed due to her DI and not being able to keep anything down. We decided that a GJ tube would be the best route to hopefully keep this from happening again. This was a 12 day stay. We got out right in time for Isabella's 2nd birthday!
Isabella's 2nd birthday:
Isabella turned the big 2 years old on January 25th! I can hardly believe it since we were told if she made it to birth she wouldn't make it out of the hospital. We are very blessed. For the special occasion, my mom and I took her to 'Beauty and the Beast' in theaters, which was very special since I saw in theaters when I was little. We also had dinner with grandma & grand auntie and she of course was spoiled rotten!!
Isabella Jeannette Dice~ Wyoming Cinderella Overall Baby Queen
The first weekend in March Isabella competed in the 1st ever Wyoming Cinderella State Pageant in Cheyenne, WY. It was such a blast and I love our pageant family. She won Queen and will represent her title for a year! Tyler is coming with us to Las Vegas in July so she can compete in Cinderella Internationals!! This is such a great opportunity to promote Holoprosencephaly Awareness. I'm so proud of my beauty queen!
Happy Epilepsy Awareness Day!!! ♥
Our journey with our precious daughter Isabella Jeannette born January 25th, 2010, at 11:31 AM. She has Holoprosencephaly and is exceeding all of her doctor’s diagnoses. She truly is our miracle baby!!
Showing posts with label vp shunt. Show all posts
Showing posts with label vp shunt. Show all posts
Monday, March 26, 2012
Friday, February 11, 2011
Whirlwind Week for the Dice Family!
Wow, we have had a whirlwind week and it's only Friday!!!!
Here's a recap:
Isabella still wasn't feeling well after the weekend and she was still arching horribly, so I called her neurosurgeon 1st thing Monday morning. By 8.45 she told us to get to Denver as soon as we could. I was on the road with her by 10.45. Tyler got pulled off his job and was about two hours behind us. When we arrived in Denver, she was catorgized priority 1 and was sent to ct while the operating room was being prepared. Within two hours of arriving she was in surgery to have a vp shunt put in. This was the same type of shunt that she had when she was 1st born. About an hour after her surgery she was smiling, giggling, eating and being Isabella again. I am so thankful we have such a wonderful team of dr's in Denver. They are amazing. She is back to being herself and feeling so much better. I love that she only had to be in the hospital 2 days!!! :)
Here's a recap:
Isabella still wasn't feeling well after the weekend and she was still arching horribly, so I called her neurosurgeon 1st thing Monday morning. By 8.45 she told us to get to Denver as soon as we could. I was on the road with her by 10.45. Tyler got pulled off his job and was about two hours behind us. When we arrived in Denver, she was catorgized priority 1 and was sent to ct while the operating room was being prepared. Within two hours of arriving she was in surgery to have a vp shunt put in. This was the same type of shunt that she had when she was 1st born. About an hour after her surgery she was smiling, giggling, eating and being Isabella again. I am so thankful we have such a wonderful team of dr's in Denver. They are amazing. She is back to being herself and feeling so much better. I love that she only had to be in the hospital 2 days!!! :)
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