Understanding Life with a Feeding Tube - Explaining a day in the life/daily routine of tube feeding and all it requires.
Here is our daily routine with Isabella's feeding schedule:
Now that she has a GJ tube, Isabella is hooked up to her feeding pump 18 hours a day at a rate of 35-40 mL an hour. This is only temporary while she heals.
From 9pm to 3pm (on a typical day) she is fed Peptamin Junior (basically an expensive Pediasure). This is easier done when we are home, but I have gotten pretty good at getting it to work on the go. :) Here feeding pump has a pretty good battery life and it rarely runs out when we are on the go. The couple times it has, I've found places that let me charge it.
Every day at 8.30 am and 8.30 pm she gets medications. I administer these thru the g port of her GJ port. This is my absolute favorite thing about her feeding pump. We had to fight Isabella for 17 months to take her medications. Now it as simple as ever.
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